Do you ever have that thought in your head that won’t go away? Like an itch you’ve got to scratch. A niggling thought that, over time (and countless episodes of staring out the window in a daydream) evolves into an all consuming ‘thing’ that you need to do ‘something’ about – but you’re not sure what? I feel like that about the ‘Coeliac Awareness’ afternoon … Continue reading ‘Food For All At School’ or is it just a daydream?
July 2013 we went to ‘Span-Ugal’ (flew into Portugal and transferred over to a resort in Sothern Spain). Our first family holiday abroad. Bearing in mind that me and Chris met in August 2010 and Peggy was born in March 2012, we hadn’t had a holiday abroad as a couple either so this was new territory. I believed (stupidly) that having a baby would … Continue reading How To Holiday with a Crohns Warrior and Little Coeliac
It’s finally here. After counting down the sleeps the Summer holidays are in sniffing distance. Year 1 will be remembered for being the year she lost her first tooth, learnt to tell the time, was ‘Narrator 11’ in the nativity, discovered ‘Horrid Henry’ books had words like ‘Bogey’ and ‘Poo’ in them (so started to read herself to sleep at night), wrote her first story, … Continue reading Little Coeliacs at School
To; The Man at the Cake Stall It’s not your fault. You didn’t know the conversation I’d had with her on the 20 second walk from the coconut shy to the cake marquee. Peg; “Mummy, can I have a cake?” Me; “Well, theres every chance they won’t have a gluten free cake here love” cue frantic glance around the remaining stalls hoping … Continue reading To; The Man at the Cake Stall
Dear Peggy Today you are 6 years, 2 months and 23 days old. You have long legs, mousey brown hair (with flashes of blond from the sunshine), have a scar on your forehead from a sugar induced, high speed, head on collision with a cupboard at a party and have blue eyes which are the same colour as ‘Forget-Me-Nots’ (I had to google ‘light … Continue reading Gluten Free in 2038
Top of Snowdon (2011) I always cringe when people ask how Chris and I met. What I want to say is that our eyes met across a smoky, packed out dance floor and our aura’s connected in an event planned out for us in our destiny. The fact is it was on Match.com! Yep, the unromantic fact of the matter … Continue reading ‘Tea’ – Total (y)
I call him warrior because the word ‘sufferer’, ‘victim’, ‘patient’ conjures up images of a weak, feeble, measly soul struggling through life. Bent over double in pain coughing into a hankie, one step away from being carried out on a stretcher when the grim reaper walks past ringing a bell calling “bring out your dead”. Just like the word ‘person’, ‘individual’, ‘husband’ doesn’t … Continue reading Operating instructions for the Crohn’s Disease Warrior
Hair bobble dangling from a strand of hair (her remaining hair forming a frizzy halo around her face), token grazed knee, PE kit (complete with 10 missing vests/socks/someone else’s plimsolls), Bat Man water bottle precariously balanced on top of a bulging book bag, coat wrapped around her waist – my daughter emerges from school on the last day of term before the Easter … Continue reading Perspective